O papel da fé na promoção da saúde em pacientes com esclerose múltipla

Paula Encarnação; Clara Costa Oliveira; Teresa Martins

doi:10.5020/18061230.2016.p574

Authors

Paula Encarnação Universidade do Minho http://orcid.org/0000-0002-7458-8105
Clara Costa Oliveira Universidade do Minho
Teresa Martins Escola Superior de Enfermagem do Porto

DOI:

https://doi.org/10.5020/18061230.2016.p574

Keywords:

Multiple Sclerosis, Faith Healing, Health Promotion.

Abstract

Objective: To understand the perception that people with Multiple Sclerosis (MS) have of their personal suffering and to verify whether faith is an internal resource used by them to lessen their suffering. Methods: Study with qualitative approach, centered on the themes - suffering, faith and sense of coherence (SOC), by using semi-structured interview. The study included 15 patients with MS belonging to a support association for MS patients (Portugal). The interviews took place from September to October 2015, in a place previously agreed with the interviewees. For categorization of the data obtained through the interviews, themes previously established were adopted. Hermeneutics was used as theoretical and methodological basis in the thematic analysis of the participants’ discourse. Results: On the theme suffering, the categories allow to understand the impact of suffering on patients with MS. On the theme faith, the categories allow to understand that, in the presence of the MS stressor events, beliefs, spiritual and religious practices can help patients meet the challenges that arise in their health-disease continuum. On the theme sense of coherence (SOC), the categories allow to realize that the SOC in these patients is acquired when they develop the ability to identify, mobilize and use resources in the confrontation of and relief from their suffering, with faith representing one of those. Conclusion: Faith, as a general resistance resource for the person with MS, when mobilized to tackle the disease, provides the acquisition of a SOC that allows these patients to achieve positive health outcomes, and should be a resource offered by the health professionals.

Downloads

Download data is not yet available.

Author Biographies

Paula Encarnação, Universidade do Minho

Professora Adjunta na Escola Superior de Enfermagem da Universidade do Minho.

Clara Costa Oliveira, Universidade do Minho

Professora Associada com Agregação no Instituto de Educação

Teresa Martins, Escola Superior de Enfermagem do Porto

Professora Coordenadora na Escola Superior de Enfermagem do Porto.

References

Fossion P, Leys C, Kempenaers C, Braun S, Verbanck P, Linkowski P. Disentangling sense of coherence and resilience in case of multiple traumas. J Affect Disord. 2014;160:21-6.

Oliveira CC, Costa A. Viver o estado terminal de um familiar: leitura salutogénica de resultados de um estudo de caso. Saúde Soc. 2012;21(3):698-709.

Costa CCR, Fonteles JL, Praça LR, Andrade ÂC. O adoecimento do portador de esclerose múltipla: percepções e vivências a partir da narrativa de dois casos clínicos. Rev Bras Promoç Saúde. 2005;18(3):117-24.

Encarnação P. Sofrimento e fé em pessoas com esclerose múltipla [tese]. Porto: Universidade do Porto; 2016.

Schmidt, J. Teologia filosófica e diálogo religioso. Síntese Rev Filosofia. 2015;42(134):423-41.

Moreira-Almeida A, Lucchetti G. Panorama das pesquisas em ciência, saúde e espiritualidade. Ciênc Cult (São Paulo). 2016;68(1):54-7.

Cassell EJ. The Nature of healing: the modern practice of medicine. New York: Oxford University Press; 2012.

Wright L. Espiritualidade, sofrimento e doença: idéias para curar. Coimbra: Ariadne Editor; 2005.

Encarnação P, Oliveira CC, Martins T. A generalized resistance resource: faith. A nursing view. Health Promot Int. 2015:1-4.

Benito E, Barbero J, Dones M. Espiritualidade en clínica: una propuesta de evaluación y acompañamiento espiritual en cuidados paliativos. Madrid: Sociedad Española de Cuidados Paliativos (SECPAL); 2014.

Benito E, Oliver A, Galiana L, Barreto P, Pascual A, Gomis C, et al. Development and validation of a new tool for the assessment and spiritual care of palliative care patients. J Pain Symptom Manage. 2014;47(6):1008-18.

Garssen B, Uwland-Sikkema NF, Visser A. How spirituality helps cancer patients with the adjustment to their disease. J Relig Health. 2015;54(4):1249-65.

Cres MR, Abdala GA, Meira MDD, Teixeira CA, Ninahuaman MFM, Moraes MCL. Religiosidade e Estilo de Vida de uma População Adulta. Rev Bras Promoç Saúde. 2015;28(2):240-50.

Cassell EJ. The nature of clinical medicine. New York: Oxford, University Press; 2014.

Krikorian A, Limonero JT, Román JP, Vargas JJ, Palacio C. Predictors of Suffering in Advanced Cancer. Am J Hosp Palliat Care. 2014;31(5):534-42.

Strauss A, Corbin J. Basics of qualitative research: techniques and procedures for developing Grounded Theory. Thousand Oaks: Sage Publications; 200817. Ricoeur P. O discurso da ação. Rio de Janeiro: Edições70; 2014.

Ricoeur P. Teoria da interpretação, o discurso e o excesso de significação. Rio de Janeiro: Edições 70;2016.

Ricoeur P. Interpretação e ideologias. 4ª ed. Rio de Janeiro: F. Alves; 1990.

Ghasemi A, Taghinejad M, Kabiri A, Imani M. Ricoeur’s Theory of Interpretation: a method for understanding text (course text). World Appl Sci J.2011;15(11):1623-9.

Bogdan R, Biklen S. Investigação qualitativa em educação: uma introdução à teoria e aos métodos. Porto: Porto Editora; 2010.

Fortin MF. Fondements et étapes du processus de recherche: méthodes quantitatives et qualitatives. 3e éd. Québec: Cheneliére Éducation; 2015.

Alschuler KN, Meghan LB. Intolerance of uncertainty shaping an agenda for research on coping with multiple sclerosis. Int J MS Care. 2015;17(4):153-8.

Mahad DH, Trapp BD, Lassmann H. Pathological mechanisms in progressive multiple sclerosis. Lancet Neurol. 2015;14(2):183-93.

Boeije HR, Janssens ACJW. ‘It Might Happen or it Might Not’: how patients with multiple sclerosis explain their perception of prognostic risk. Soc Sci Med. 2004;59(4):861-8.

Lublin FD, Reingold SC, Cohen JA, Cutter GR, Sørensen PS, Thompson AJ, et al. Defining the clinical course of multiple sclerosis. The 2013 revisions. Neurology. 2014;83(3):278-86.

Faure E. Apprendre à Être. Paris: Fayard-Unesco;1972.

Encarnação P, Oliveira CC, Martins T. Dor e sofrimento conceitos entrelaçados: perspectivas e desafios para os enfermeiros. Rev Cuidados Paliativos. 2015;2(2):22-31.

Junges JR. As Interfaces da teologia com a bioética. Perspectiva Teológica. 2010;37(101):105-22.

Cavaco VSJ, José HMG, Louro SPRLP, Ludgero AFA, Martins AFM, Santos MCG. Qual o papel da esperança na saúde da pessoa? Revisão sistemática. Rev Referência. 2010;12:93-103.